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Wordle: Rogers CDH

Tuesday, August 4, 2009

No G-tube for me!


We had a great visit yesterday with Dr. Mantor and we are so blessed to have him caring for Weston. God has blessed us so richly with such talented physicians.

We saw Dr. Mantor yesterday to have a consult on a G-tube and to get his thoughts and what the risks and benefits would be for Weston. He explained what he would have to do and work with. With 'normal' kids it is a complicated surgery but is easily done. With Weston it is a different story and Dr. Mantor told us that if Weston wasn't progressing with his feeds that he might of told us differently but he is taking more by mouth. So Dr. Mantor told us that he was going to call Dr. G and tell him that is 4 against 1. We are praising God that Dr. Mantor felt that wasn't the right decision for Weston. Dr. Mantor also looked a recent x-ray of Weston's chest and said that his chest looks great, no re-herniation and that he is asymmetrical and that his left lung is filling in really good. Praise God!
Update on Weston's eating he is doing good. On Sunday morning he pulled out his tube, so we decided not to put it back in to see what he could do. I will not lie it has been hard on me worrying if he is getting enough calories. But we are journaling everything and we can see how far from what he should be getting he is. On Sunday he only took 324 calories which he is supposed to get 900 calories well yesterday he took 547 calories so we are so excited. It amazed me yesterday while we were at Wal-Mart trying to find high calorie foods that there aren't many but we found some cookies, so maybe he'll like those. Weston is also wanting to feed himself and he is doing really good.
Weston is crawling everywhere, he loves going into the kitchen and pull all of the magnets off the fridge and play with the flyswater. It is amazing to see his progress.
We are so truly blessed, yesterday we also went and see two of his nurses in the NICU and one of them had told me that had a couple of CDH babies in July and neither of them had to go on ECMO praise God.
Thank you all for your continued prayers, Weston continues to grow and get stronger every day.

Jenny

1 comment:

  1. that is great news! I have been praying for Weston. I pray he continues to do well on his feeds and continues to get stronger and.

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