Surgeon Appointment
1 year ago
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The Rogers
- Timothy and Jenny
- Timothy and I have been married for seven years. Timothy is a computer programmer and I am blessed to be a stay at home mom. After four years of marriage we were blessed with our first son Quinton in June. Two years later we got pregnant again and were so excited, we went for our regular ultrasound to see how the baby was growing at 20 weeks, to find out that our baby boy was going to face one of the toughest birth defects, congenital diaphragmatic hernia (CDH). We had so many fears not knowing if he would even make it to term, but giving him every chance and not holding God back. This is his journey and ours.
What is CDH?
The wide, flat muscle that separates the chest and abdominal cavities is called the diaphragm. The diaphragm forms when a fetus is at 8 weeks’ gestation. When it does not form completely, a defect, called a congenital diaphragmatic hernia (CDH), is created. This is a hole in the muscle between the chest and the abdomen.
The majority of CDHs occur on the left side. The hole allows the contents of the abdomen (stomach, intestine, liver, spleen, and kidneys) to go up into the fetal chest. The herniation of these abdominal organs into the chest occupies that space and prevents the lungs from growing to normal size. The growth of both lungs can be affected. This is called pulmonary hypoplasia.
While in the uterus, a fetus does not need its lungs to breathe, because the placenta performs this function. However, if the lungs are too small after the baby is born, the baby will not be able to provide itself with enough oxygen to survive.
From Unversity of California, San Francsico
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1 in 2,500 babies are born with CDH each year. It has a high mortality rate 50/50.
Our friends and CDH babies
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