Our Wordle

Wordle: Rogers CDH

Monday, May 25, 2009

Crazy Satruday

Many of you follow us to find out how Weston is doing and how he is improving every day. Well for once Weston has not been the worry of our lives and we would like your prayers for our older son Quinton.
On Saturday after noon my husband Timothy, our brother-in-law David were working on Timothy's Trans Am in the garage. They were changing out the radiator and Quinton was wanting to be with his Daddy all day and help with the car. Well they changed out the radiator took it for a drive to make sure everything was working and got it in the drive way, had to running for a little bit longer and then backed it into the garage and turned off the car. About 15 minutes later, there was a popping noise and boiling antifreeze spraying everywhere.
The antifreeze hit both Timothy and Quinton. Timothy's hip got burned. Quinton got to worst of it. Quinton's right side of his face, and his right arm have first to second degree chemical burns. We rushed straight to the ER and got treated right away, the hardest part was when the medical them had to scrap away the dead skin and debris. Not fun for Mommy and Daddy to listen to. Quinton is a real trooper though. We go and see the burn clinic at Children's on Tuesday sometime.
I am so proud of him. Quinton is still trying to understand what happened. He is almost 3 so he doesn't understand where the "fire water" came from..what he is calling the antifreeze and he doesn't understand why the car hurt him..he loves cars. But we are blessed that Timothy knows so what what Quinton is going through they are burn buddies and Quinton does not want Daddy out of his sight. Timothy leaving for work this morning was tough.
Keep our family in your prayers. Pray that Quinton will heal and that if there is scaring that it will be minimal. We are so blessed and thank God that it wasn't worst.

Jenny

Tuesday, May 19, 2009

Movin' and grooving

Weston is starting to get more mobile. Saturday we went down to my sister-in-laws and while we were there, not sure if it is because it was so place new but Weston started to try and crawl. It is so exciting. He starts grabbing for something and starts to move towards it, he gets a leg stuck underneath him but he stays that way for awhile which is really exciting since usually he gets frustrated really easily.
We also started him on the stage 2 foods and he is handling them really well. He loves chewing on everything so probably starting to get in his top teeth. We are also excited about his eating drinking, he took 55 cc's last night from the bottle, that is almost 2 oz, yeah! His refluxing is getting better, he only spit up once yesterday and that was because he got chocked on a little, microscopic piece of toast. Timothy and I are thinking that if we get his dried up and no snot that he might really take off on eating.
It is amazing to see his brain working, he tries to do everything that big brother Quinton does and wants to be right with him and Daddy when they are playing.
Weston is just the happiest baby and we are so proud of all the steps he takes forward. Yesterday he also put his foot in his mouth, which is amazing, he was so stiff when he came home and wouldn't bend at all. The steps he contniues to take are amazing.

Thursday, May 14, 2009

Growing up so fast

Not sure if Weston will be a doctor when he grows up but I couldn't pass up dressing him in scrubs for his first birthday pictures. Time has gone by so fast, I cannot believe that he is 10 months. He has accomplished so much and always amazes us everyday. Weston gave me a great gift on Mother's day he said "Mama" for the first time, hasn't really said it since but it was so special.
We went and saw Weston's GI doctor on Tuesday and he was concerned Weston had lost so much weight 400mL, but when he saw him he said Weston didn't look to bad, just that it looked horrible on paper. He was also upset he put us on Neocate for Weston's eczyma and it didn't clear up so dairy isn't Weston's underlying problem. His doctor said that he is going to keep him on Neocate for a little longer to see if Weston's starts to gain weight again. We had changed his feeding schedule and amount from every three hours to every four and from 120cc which is almost 4 oz to 140cc which is almost 5oz. Weston has tolerated that change really good, just in the middle of the chnage he caught a stomach bug and ear infection which didn't help. So we got back to the GI doctor in two weeks to see if he is still losing and then figure out what the next step is.
Weston just rolled over all by himself, so exciting. Mommy wasn't paying attention and my leg was in his way so he couldn't do it the first time.

Sunday, May 10, 2009

Happy Mother's Day!

Happy Mother's Day!

Today is a great mother's day, my first mother's day with Weston. I thank God for where we have been and where we are going. Last year I was unsure of what to be feeling on this day, there was joy but uncertainty. My heart was breaking not knowing if our son would survive. I knew I wouldn't get to have the first like most mothers but the Lord has given me so many more first that most mother's never get to experience. Like most mothers you cherish the first sound your baby makes wait two months and that sound it even more precious. After your child is born you cannot wait to hold your new bundle of joy in your arms wait two months and the joy that fills your heart when you finally getting to hold your precious one is even more overwhelming. Surviving a surgery at 3 days old, coming off ECMO at 10 days, breathing on his own, and amazing the medical world. I am praising God and thanking him for today for blessing my life...my families life with this special child for Weston who continues to overcome and always come out on top. He gives me strength every day with a smile and a laugh.
What a wonderful Mother's day this is :o)

Thursday, May 7, 2009

Happy in the day, Sick in the night

My poor baby, it seems like he gets off an antibiodic and then he catches something else. He just got off of one on Monday and now has who knows what. Yesterday he started not feeling good around 6:30 at night and was running a fever of 102. We gave him tylenol it dropped his temperature and around 3 in the morning Timothy was able to put Weston in his own bed and come to bed as well. They have been sleeping in the chair. This morning Weston was doing good, I mean he was a little tired and not playing as much as usual but I figured well he was sick last night he wont be up to par just yet. He drank some from his sippy cup and even took some milk from the bottle. So we put off going to see his doctor because I thought he was feeling better. Then around 5 ish, tonight he started throwing up and running a temp of 101. So gave him tylenol again and he started to feel a little better around 7 and then all of a sudden when we started his last feed, he starts throwing up again, his heart rate went into the 200's and he dropped his oxygen only a little down to 95. So we stopped his feed and undressed his trying to get his temp down which now it was up to 103. Right now he is sleeping on Daddy's chest and stating good, 98 and heart rate 119. We are going to the doctor even if he is jumping off the walls. I just don't understand how he could be feeling good this morning and then this evening be so different. I worry about him so much. Just hope we can figure out what is going on and make him feel better.

Saturday, May 2, 2009

Rainy Saturday

Rain has kept the Rogers' family inside for today, we are having a productive day thought moving furniture trying to get the boys room set up to were I like it and getting the guestroom ready for when everyone is here in July for Weston's first birthday. I cannot believe he'll be two in a couple of months. I almost have his invitations completed so I can get them out early enough for his doctors and nurses to clear their schedule so they can come.
Weston is doing great, he is having fun playing with Daddy and Quinton and Thomas the Train, the train comes rolling by and Weston is trying to grab it, he is really fast. We just started feeding him every four hours, so far so good, he has not refluxed more so that is promising since we are feeding him 20cc extra each time, I was worried about his stomach not being big enough, but he is doing great. He never ceases to amaze me. Weston also loves drinking out of his sippy cup, he takes at least 8oz a day from it so that is so exciting. I am trying to figure out what we can start feeding him, I want to start pureeing food for him so he can start eating what we eat so I am starting to thicken his first foods with cereal to get him used to thicker food being in his mouth and him not gagging. Weston is putting everything in his mouth. Well he has been on neocate milk for almost a month and still no change in his eczema so I am guessing he is not allergic to dairy but we'll see what his GI doctor says in a couple of weeks.