Our Wordle

Wordle: Rogers CDH

Wednesday, September 16, 2009

I love to eat

Weston continues to amaze his daddy, his therapist and myself. We think back to a month ago and he was not eating really anything by mouth a littler here a little there and now he is eating everything by mouth. It is so exciting. I have started giving him bigger bites and he tolerates them all so well, sometimes it is hard to remember what a struggle it was just a couple months ago at his first birthday. His days fluctuate, if he takes a lot of fluids he doesn't eat a lot of solids and then the opposite the next day a ton of solids and less fluids. He loves his vegetables he is not quite sure about fruit, but we are working on it.
Weston's OT is so excited that he is doing so great, he shows no oral aversion what so ever, he is manipulating his food really good moving his tongue just like he should and is managing his food. Weston is also trying to walk every where and he gets into everything.
We have our appointment with Weston's GI doctor on Tuesday and I can't wait to see if he has gained any weight and I pray that we are discharged from his care. Weston has taken huge steps this past month and we know that is it all God and He has blessed us so richly with Weston making all these changes.

Thursday, September 3, 2009

Where am I?

This morning Weston had his Bayley developmental study and physical exam by one the of the neoatologist that had him in the NICU.
The therapist who did Weston's study was so nice and it was so neat to watch Weston do the different tasks set in front of him. I was with him for his cognitive test and Timothy was with him for his motor and language tests(one of us had to stay with Quinton)
The results from his test and they are testing him as a 13 months old since he was born at 37 weeks and that is the lower part of the premature scale.

For Cognitive which is how he explores new toys, solves problems and new experiences he got --16 months
For Receptive Communication which is identifying pictures, following simple directions and preform social routines he got --10 months
For Expressive Communication which is non-verbal expression such as smiling, babbling and laughing he got --13 months
For Fine Motor which is assessing muscle control like following objects with their eyes, grasping an object, and bring hand to mouth he got --13 months
For Gross Motor which is measuring his ability to crawl, make stepping motions, support their own weight and stand he got --10 months.
Weston's physical exam went really good, the doctor said he looked good especially for being as ill as he was.

Timothy and I are praising God for these results, the doctor said that Weston's verbal would pick up since he is advanced cognitively. We weren't sure how he would score on his motor skills but his therapist has been watching his gross motor and his muscle tone in his legs. We are so blessed. Another step in us knowing that Weston is getting healthier.
I am still worried about this upcoming winter and the unexpected we had two hospital visits and one we almost lost him. We continue to pray daily that God continues to heal Weston and that his lungs continue to grow and get stronger.

Thank you all for your prayers we know they work miracles.

Jenny