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Wordle: Rogers CDH

Wednesday, August 4, 2010

Where has the time gone

Wow, I am horrible on updating Weston's blog and letting everyone know how we are doing. We are doing great!! I can't believe that we celebrated Weston's 2nd birthday almost a month ago. We learned that you don't give him cards first because we never get to the presents. We gave him a Mickey Mouse clubhouse musical card and he did not want to put it down.
We had a great time in Colorado/New Mexico with our families. We learned something every important that Weston starts struggling with his O2 stats at about 8,000ft, he drops down into the low 80's. We are so thankful that our parents had a friend close by that used oxygen so she had a portable pulse ox with her so we could check his stating. Something I need to purchase in the future whenever we take trips out of our elevation, just to monitor Weston and it was something I hadn't even thought of. So just an FYI to all other CDH families out there that look at Weston's story.
When Weston turned 2 he hit the terrible 2's. He has been so rebellious. I mean he was before but now even more so, so stubborn. At the beginning of July we moved Weston into his toddler bed. He is really doing good, there are times he comes into our room and I take him right back to his bed and falls back to sleep.
Two weeks ago Weston got released from therapy so we are specialist and thearpist free. It is so exciting, if you would have asked last year if this is where we would be I would have not imagined it. Of course Weston was still on his feeding tube and our GI doctor was telling us he needed a G-tube I praise God that we knew Weston could do it and he has. Slow and steady.
We are so blessed. There are still nights when I lay him down to sleep I just sit there for a minute listening to him breath, it is such a wonderful sound.

1 comment:

  1. Happy 2nd Birthday Weston! He looks so happy with his Birthday card. Nayeli loves Mickey Mouse too. Thats all she wants.

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