The majority of CDHs occur on the left side. The hole allows the contents of the abdomen (stomach, intestine, liver, spleen, and kidneys) to go up into the fetal chest. The herniation of these abdominal organs into the chest occupies that space and prevents the lungs from growing to normal size. The growth of both lungs can be affected. This is called pulmonary hypoplasia. 
CDH International
9 months ago
Our Wordle
Wednesday, October 7, 2009
No more Specialists
We are so excited that we have no more specialist. Weston's GI doctor released him from care two weeks ago and we are praising God. But then there seems to be something missing this time last year Weston was still in the NICU, we were waiting to see if he would take anything from the bottle, wondering if the doctors would let us take Weston home on a NG tube. I am so glad that we only have our pediatrician now. Then the worry starts, worrying about flu and RSV season, you forget about sickness when it has been so nice and warm through out the summer months. I know Weston is strong having had RSV and pneumonia last year and once this year. But still scary. We are going to start limiting visits to the store and mainly just take him to church and try and limit his exposure to things. I know he is stronger this year, I know his little lung is growing and that he is our miracle and he continues to amaze me everyday. I asked my husband last night if I should call him pediatrician just to talk and ask if he was would be worried about Weston this year, but as we talked I started to realize Weston hasn't followed any textbook if he had, he would not be here today. Weston has set his own medical path and I praise God everyday that He is in control.
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Hi Jenny! I don't think we have met. I am a cdh mommy too. Ava is three and boy has she had a time. I was reading your entry thinking..."No you can't stop seeing the specialists!" I am not trying to scare you by any means but he will never be "out of the woods". We thought this about Ava. She survived at birth and at 47 days she came home and was "normal" BUT then at 25 months she reherniated and our lives were turned upside down. PLEASE keep Weston going to the specialists as he needs to be monitored. I don't care what they say. They must know his normal in case (God forbid) something should happen due to his cdh. I just feel the need to warn parents that things happen and our children will never be normal. I can give you a check list of things to look out for if you email me. Again I am not trying to discourage you in anyway. I am SO glad he is doing SUPER but we Mom's have to be onguard all the time. Ava is still here because I fought for her.
ReplyDelete~Terri and Ava
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Weston has come a long way. So glad he is doing great.
ReplyDeleteI am a basket case about the cold/flu/RSV season. We are limiting visitors and taking Nayeli out. We just hope we dont get sick and then get her sick.
Praying for you and your family to have a healthy winter.