Weston's been home a year!!

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A year ago we were bring Weston home from the hospital. I never thought anything would be harder than having to leave your baby in the hospital for three months but coming home there would be more challenges.
Learning how to replace an NG tube, waking up so many times at night to give meds and to give him his feed. After a month of being home Weston catching pneumonia and being in the hospital three days before Thanksgiving. Coming home on oxygen and now getting used to having an oxygen tank in the hallway and oxygen tubing all around the house.
Watching how he is breathing if we need to turn up or down his oxygen watching his pulse ox monitor to see what he is stating.
Doing great until March when he caught RSV which was turning into puenmonia, having a five day hospital stay, I'll never forget the ER doctor calling for a crash cart, words a parent should never hear. Coming home learning how to do breathing treatments and to continue to watch his breaths per minute.
Over coming oral aversion and learning how to eat everything in site. Coming off oxygen after being on it for 5 months after he caught pneumonia the first time in November. Coming off his NG tube after 13 months and having no set backs.
I would not trade any of these experiences. Our faith in God has grown. We did not know if our baby would come home and then he did. We were worried about his catching a cold or RSV and guess what he did, but he/we have over come with God. All through God, without Him we would not be where we are today celebrating Weston being home a year!! Praise God.
Thank you all for all your love, support and prayers through this part of Weston's life.
He continues to amaze us he is cruising around everywhere, he has taken a couple steps by himself. He is becoming more independent and he has the greatest personality, he is a jokester and loves to laugh and smile. He gets in fights with his brother and gets jealous. He eats everything, he loves green beans and hot dogs and chicken nuggets. He is drinking from a sippy cup and loves water. He loves sliding down slides and playing with cars.
We are so truly blessed, I cannot wait to see what we have in store for this year.

Jenny

No more Specialists

We are so excited that we have no more specialist. Weston's GI doctor released him from care two weeks ago and we are praising God. But then there seems to be something missing this time last year Weston was still in the NICU, we were waiting to see if he would take anything from the bottle, wondering if the doctors would let us take Weston home on a NG tube. I am so glad that we only have our pediatrician now. Then the worry starts, worrying about flu and RSV season, you forget about sickness when it has been so nice and warm through out the summer months. I know Weston is strong having had RSV and pneumonia last year and once this year. But still scary. We are going to start limiting visits to the store and mainly just take him to church and try and limit his exposure to things. I know he is stronger this year, I know his little lung is growing and that he is our miracle and he continues to amaze me everyday. I asked my husband last night if I should call him pediatrician just to talk and ask if he was would be worried about Weston this year, but as we talked I started to realize Weston hasn't followed any textbook if he had, he would not be here today. Weston has set his own medical path and I praise God everyday that He is in control.