God Sent to Me an Angel

This was posted in the CHERUBS newsletter this month and I wanted to share this with all my friends and family. God is so good and amazing.


God Sent to Me an Angel - By Paul Dammon (I found this poem on a CDH blog this past week)

God sent to me an angel,
it had a broken wing.
I bent my head and wondered
"How could God do such a thing?"
When I asked the Father
why He sent this child to me,
the answer was forthcoming,
He said "Listen and you'll see."
"My children are all precious,
and none is like the rest.
Each one to me is special,
and the least is as the best.
I send each one from Heaven
and I place it in the care
of those who know my mercy,
those with love to spare.
Sometimes I take them back again.
Sometimes I let them stay.
No matter what may happen
I am never far away.
So if you find an angel
and you don't know what to do,
remember, I am with you,
love is all I ask of you."

Slowing down services

I am so excited to write this post. Yesterday while meeting with Weston's therapist we decided that we should start cutting back on Weston's OT sessions from once a week which we have had since November last year and go to once a month. This is so exciting and an answer to prayers that Weston is catching up developmentally right where he needs to be. We wrote out a few goals for him they were speech and sleeping through the night :) I know great goals for any kid to have.

We know that it is the prayers and God that have helped our son get to were he is now and we praise God every day for our boy and how normal he is.

Please keep the CDH community in your prayers as new Cherubs and expectant parents are given this diagnoses every day. We need to see more of these kids survive and thrive.

Already 2010

We pray everyone has had a great holiday season and are having a great new year so far.

We are doing great here at the Rogers house. We had a wonderful Christmas season, my parents came down for a week and enjoyed the boys and the boys loved having Grandma and Papa here. We got snow on Christmas eve which was great having a white Christmas. We went sledding in our front yard and had a blast, Weston enjoyed it but wasn't sure about the sudden stop at the end, getting stopped by mommy before he went into the street. We also went to Chucky Cheese while Grandma and Papa were here, Weston loved showing them all the rides he liked to do.

Over the holiday season I found out that there was another baby born with CDH at Children's and his name was Westyn too. I have been corresponding with his Nana and he is dong great. He was born the beginning of December he didn't require ECMO and was on oxygen and IV for a month. He has an NG tube but is taking great from the bottle and the great thing is he is going home today! I am so excited for his family and that he is doing so well. It is amazing how different all these kids are. I know they are all tough.

Now on to what everyone wants to know, how is Weston doing. He is doing good. He has had 3 rounds of synigsis shots this season and is doing good so far. We still battle the occasional ear infection but I know he is doing so much better not having all the drainage caused by the NG tube that he had last year. We haven't put him in isolation like we were in last year, but we are still taking all the precautions of washing hands and staying away from anyone who is sick. Weston is walking everywhere and loves chasing Quinton everywhere. He is starting to shake his head yes and no when we ask him a question. He is also my temper thrower, he has a very independent bone in his body and he continues to show it everyday. He loves anything that Quinton is playing with and that usually starts a fight.

Tomorrow during his therapy we are doing his evaluation and goals and his therapist told me the end of last year not to be surprised if they cut back services or if he doesn't qualify anymore. This is so exciting to think that Weston is developmentally right where he needs to be. What a long journey we have been on.

We continue to get questions on Weston's health and if he is 'good'. Weston is good but we always have to worry about reherniation (which can happen anytime and out of the blue) and lung issues such as pneumonia and RSV(his lungs are growing but they are still compromised). Weston is an amazing little boy and we praise God everyday and we know that prayers are what made our journey easier.

We pray you all have a blessed, healthy and happy 2010!