Growing up fast

Our God is an awesome God! You cannot say much else when you see His power in your life.

Weston is doing amazing and its the little things that I always catch myself watching with him. For instance I love his laugh it warms my heart, I know what mother doesn't feel that way :)

Its hard for me to believe that Weston is going to be 21 months next Friday. Time is going by so fast! Weston is so independent and doesn't mind showing it especially if he doesn't get his way. He is a thinker, you can see the gears working when you ask him a question. He is a big helper he loves to sweep and vacuum. His newest trick is pushing buttons on and off. He thinks it is the funnest game ever. Last Sunday he walked to Bible class all by himself with his bible in hand.

Last year we were just getting out of the hospital for the third time. Weston had caught RSV and the RSV was turning into pneumonia, as a parent you try to be strong but with the ER doctor is calling for the crash cart that is when you break. I was calling everyone we knew as we sat in the waiting room while the doctors worked on Weston. Praise God He prevailed and Weston was stabilized. He had a hospital stay of 5 days. As I look back I praise God for our experiences even though they were bad it really makes you appreciate what you have. I praise God that we have been hospital free for a year!!(knock on wood) We have had to give Weston breathing treatments but other than that he has been a healthy boy. He isn't in any isolation which is nice.

Weston received his last RSV shot for the season. I thank God and his doctor that Weston had this extra protection for one more year to allow his lungs to get stronger. Of course Weston is excited he doesn't have to have a nurse come out to the house. He knows when they pull out the scale to weigh him what is happening it is so sad.

One thing about Weston that amazes me he loves lifting up his shirt which reveals his scar, I know he is just being silly but seeing it everyday and a smiling face above it always makes me realize how blessed we are.

Thank you all for following Weston's progress we are so blessed that so many people care and are praying for Weston's continued health. Don't forget to count your blessings and name them one by one because you'll be so amazed at what you have and what God has provided.

Happy 19 months!

Happy 19 months Weston!!

Look how far you have come my amazing little man, you have accomplished so much. This time last year you were on oxygen, NG feeding tube and pretty much being propped up by mommy or daddy.
This year you are on room air have been for 10 months, eating solids and pretty much everything in front of you for 7 months and walking every where for 4 months. Wow thank you Lord.
You continue to amaze me, you are km free even though we need to make a trip to the hospital just to see everyone. Your pediatrician's office loves you even though they probably wish we would go for well baby visits they know you.
You are start to get down a little run and trying to keep up with Quinton where ever he goes. You are getting very independent and when brother doesn't listen to you fuss at him you go to bite him to get his attention. You love to break free after church service so you can go and run up to the front of the auditorium and crawl onto the stage. You are an extreme momma's boy and do not like to let mommy out of your sight. You love looking at books and especially like the Tag reader that reads the story to you. You are getting another bottom tooth in so now you have 12 teeth. You love to go outside and play and love to bring me anybodies shoes. You say "hi" and wave. You are now sleeping through the night have been for almost a week.
You are an inspiration to us and we love you so much. You are brilliant and are so full of lose and to have all the attention on you.

Thank you Lord for 19 wonderful months of ups and downs, bumps and bruises it means we're growing.

So exciting!!

We are celebrating at the Rogers house and espeically Mommy. Weston has slept through the night for five nights in a row!! Weston had been waking up about four to five times a night and I was getting up with him and rocking him back to sleep which usually took about five minutes or more. So this has been great, last Monday night I let him start fussing for 15 minutes and then would go and comfort him it only took him two nights before he caught on and he has enjoyed sleeping in his crib and sleeping through the night.

A week and a half ago Weston was having some congestion and was not wanting to sleep laying down so I took him to the doctor and he didn't have an ear infection and sounded good in his lungs so we went home and thought he was on the upwards slide of everything. Well the following day he was acting worst so I took him back in to the doctor's and he still sounded clear but his doctor wanted to take a chest x-ray just to make sure and sure enough Weston had walking pneumonia. His doctor put him on a antibiotic just to help him get over the cold faster since walking pneumonia is a virus and you really have to just let it take its course but Weston is doing great.

We are so happy that Weston got over this hurdle. His appetite slowed down quite a bit but this was our first big sickness without his NG tube so I think he did great and so did we. We are continually amazed at how great Weston is doing and we praise God everyday for our little trooper.

God Sent to Me an Angel

This was posted in the CHERUBS newsletter this month and I wanted to share this with all my friends and family. God is so good and amazing.


God Sent to Me an Angel - By Paul Dammon (I found this poem on a CDH blog this past week)

God sent to me an angel,
it had a broken wing.
I bent my head and wondered
"How could God do such a thing?"
When I asked the Father
why He sent this child to me,
the answer was forthcoming,
He said "Listen and you'll see."
"My children are all precious,
and none is like the rest.
Each one to me is special,
and the least is as the best.
I send each one from Heaven
and I place it in the care
of those who know my mercy,
those with love to spare.
Sometimes I take them back again.
Sometimes I let them stay.
No matter what may happen
I am never far away.
So if you find an angel
and you don't know what to do,
remember, I am with you,
love is all I ask of you."

Slowing down services

I am so excited to write this post. Yesterday while meeting with Weston's therapist we decided that we should start cutting back on Weston's OT sessions from once a week which we have had since November last year and go to once a month. This is so exciting and an answer to prayers that Weston is catching up developmentally right where he needs to be. We wrote out a few goals for him they were speech and sleeping through the night :) I know great goals for any kid to have.

We know that it is the prayers and God that have helped our son get to were he is now and we praise God every day for our boy and how normal he is.

Please keep the CDH community in your prayers as new Cherubs and expectant parents are given this diagnoses every day. We need to see more of these kids survive and thrive.

Already 2010

We pray everyone has had a great holiday season and are having a great new year so far.

We are doing great here at the Rogers house. We had a wonderful Christmas season, my parents came down for a week and enjoyed the boys and the boys loved having Grandma and Papa here. We got snow on Christmas eve which was great having a white Christmas. We went sledding in our front yard and had a blast, Weston enjoyed it but wasn't sure about the sudden stop at the end, getting stopped by mommy before he went into the street. We also went to Chucky Cheese while Grandma and Papa were here, Weston loved showing them all the rides he liked to do.

Over the holiday season I found out that there was another baby born with CDH at Children's and his name was Westyn too. I have been corresponding with his Nana and he is dong great. He was born the beginning of December he didn't require ECMO and was on oxygen and IV for a month. He has an NG tube but is taking great from the bottle and the great thing is he is going home today! I am so excited for his family and that he is doing so well. It is amazing how different all these kids are. I know they are all tough.

Now on to what everyone wants to know, how is Weston doing. He is doing good. He has had 3 rounds of synigsis shots this season and is doing good so far. We still battle the occasional ear infection but I know he is doing so much better not having all the drainage caused by the NG tube that he had last year. We haven't put him in isolation like we were in last year, but we are still taking all the precautions of washing hands and staying away from anyone who is sick. Weston is walking everywhere and loves chasing Quinton everywhere. He is starting to shake his head yes and no when we ask him a question. He is also my temper thrower, he has a very independent bone in his body and he continues to show it everyday. He loves anything that Quinton is playing with and that usually starts a fight.

Tomorrow during his therapy we are doing his evaluation and goals and his therapist told me the end of last year not to be surprised if they cut back services or if he doesn't qualify anymore. This is so exciting to think that Weston is developmentally right where he needs to be. What a long journey we have been on.

We continue to get questions on Weston's health and if he is 'good'. Weston is good but we always have to worry about reherniation (which can happen anytime and out of the blue) and lung issues such as pneumonia and RSV(his lungs are growing but they are still compromised). Weston is an amazing little boy and we praise God everyday and we know that prayers are what made our journey easier.

We pray you all have a blessed, healthy and happy 2010!

Where has 2009 gone?

I cannot believe that it is already December and that the Christmas tree is up and Christmas shopping for the boys is done.
When I think about last year Weston being in the hospital three days before Thanksgiving and being put on oxygen because of the pneumonia it amazes me and I praise God where Weston is now.
Weston had his second synagsis shot of RSV season on Sunday right before we head for evening services. He is such a trooper. It always takes me by surprise how much synagsis he gets in each leg I feel so sorry for him. He has a runny nose and a cough, but we are thinking it is allergy and maybe a little bit of a cold. I am staying on top of it and he sounds clear and I am keeping his doctor updated.
Weston is teething finally after 5 months of no new teeth he has to be difficult and have three teeth breaking through one on top and two on the bottom.
Weston enjoys walking more than crawling. He is now getting more confident and trying to increase his speed, it is only at those times that he is chasing after brother and trips over his own feet, its the face first that always hurt the most.